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Our children with Crohn’s disease and ulcerative colitis deserve the same care as adults!New Zealand has one of the highest rates of Crohn’s disease and ulcerative colitis (known as inflammatory bowel disease or “IBD”) in the world. These diseases are chronic and relapsing illnesses, characterised by sudden flares, emergency department visits, frequent hospitalisations, and, often, surgery. It is estimated that there are 20,792 New Zealanders with these diseases and the number is expected to double in the next ten years. Many of these patients are children. While almost every DHB in NZ funds adult IBD specialty nurses, there is not a single paediatric IBD nurse in all of New Zealand, not even at our largest paediatric centre, Starship Hospital. The issue of equity for this very vulnerable segment of our population needs to be raised. The critical role of the IBD nurse is to provide direct, immediate medical access and assessment to children when their disease suddenly flares. In these situations, it is prompt treatment which prevents lengthy hospitalisations and life-altering surgery. In addition, IBD nurses are the primary educators of both patients and caregivers, they manage immunosuppressive medications, ensure that preventative measures such as vaccinations and screening procedures are up-to-date, provide advice on diet, manage side effects of medications, and ensure compliance with treatment regimens. Not only does the work of the IBD nurse improve patient outcomes, but it significantly frees up time for their physician colleagues to perform other tasks. The impact of the IBD Clinical Nurse Specialist on patient outcomes and hospital costs has been well and repeatedly documented. A recent study reported in the British Medical Journal in 2020, demonstrated a one-third decrease in hospitalisations in the year following the addition of an IBD nurse to the GE team (P=0.002). Similar results were reported in a study from the Royal Adelaide Hospital in the Journal of Crohn’s and Colitis. Hiring a single nurse will not only save taxpayers tens of thousands of dollars, but, most importantly, will help keep our children out of the hospital and out of surgical theatres. It will ensure that our children have access to the same quality care that is routinely available to adult IBD patients in New Zealand and to other children throughout the world.1,557 of 2,000 SignaturesCreated by Richard Stein
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Healthy Food and Drink in SchoolsWe believe that every child and young person in New Zealand deserves the best start to life and what they eat and drink is vital for optimal physical and mental health. Research in New Zealand has highlighted ‘free sugars’ as contributing significantly to high rates of poor physical health, poor oral health, diabetes and other health-related diseases.[1] The consumption of free sugars in sugar sweetened beverages contributes to 26% of the total sugar intake of children.[2] Studies conducted by the Environmental Health Indicators New Zealand (EHINZ) note that dental decay is now the most common disease reported among children in New Zealand. But sugary drinks are not the only problem. The food our children eat also needs to be healthy and nourishing. Research has demonstrated that children who eat healthy food are better behaved and better able to concentrate in class and learn.[3] Education is key to improving health outcomes in our community and schools need to lead the way. Promoting healthy food and then selling unhealthy food in our school canteens does not make sense. We already have Healthy Food Guidelines, Schools need to be given the duty and support to implement them. [4] For more information, please contact: Shona Jaunas (President Open Forum for Health Information) [email protected] https://www.openforumforhealthinformation.com/nz-schools-consultation [1] Free sugars are defined by the World Health Organisation as monosaccharides and disaccharides added to food by both the manufacturer and consumer, including sugars naturally present in honey, syrups, and fruit juice. [2] Sundborn et al, “New Zealand’s growing thirst for a sugar-sweetened beverage tax”, New Zealand Medical Journal, 2015. [3] Rucklidge and Kaplan, “The Better Brain, How Nutrition Will Help You Overcome Anxiety, Depression, ADHD and Stress, Vermillion, 2021 [4] 20210927-Nutrition-Guidance-Formatted-FINAL.pdf (education.govt.nz)1,366 of 2,000 SignaturesCreated by Open Forum for Health Information New Zealand
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Condemn Israeli aggression against peaceful Palestinian worshippersAccording to international news sources, more than 300 Palestinians were detained on Easter Friday in Al-Aqsa Mosque in what rights groups say was the largest en masse arrest over the course of one hour and in one location in more than 20 years.(1) At least 158 Palestinians were injured in the ensuing violence. Most recently, Israel has prevented Palestinian Christians from entering the Church of the Holy Sepulchre in Jerusalem to observe the Easter Vigil associated with the Christian Orthodox celebrations.(2) Tensions across the occupied territories continue to mount as the Israeli Occupation forces use violence against Palestinian Muslim and Christian worshippers and peaceful protestors. Every thirty-three years Ramadan, Easter and Passover coincide. It is especially sad that the recent aggression by the Israeli Occupation forces has occurred at a time of religious festivity for all three of the world’s monotheistic religions. Israel’s aggression not only endangers civilians at a holy moment, it also violates the sanctity and meaning of all three holidays. New Zealand has a strong record of supporting human rights including the freedom of thought, conscience and religion as enshrined in the Universal Declaration of Human Rights. New Zealand’s response to the March 15th Mosque attacks demonstrates its commitment to ensuring that religious communities should be able to observe their faith free of harassment and violence. We call on the New Zealand Rt Hon Prime Minister Jacinda Adern and the New Zealand Foreign Affairs Minister Hon Nanaia Mahuta to demonstrate their commitment to religious freedom by condemning the aggression of the Israeli Occupation forces against worshippers and peaceful protestors and extending the same concern the New Zealand government has expressed for Muslims in Aotearoa for Palestinians at worship. New Zealand has consistently held a principled position on Palestine through the United Nations in keeping with international law. This includes New Zealand’s vote in 1974 in favour of issuing an invitation to the Palestine Liberation Organization’s (PLO’s) chairman Yasser Arafat to address the UN General Assembly (UNGA). New Zealand’s principled stance can also be traced in its 2012 UNGA vote to upgrade the status of Palestine to non-member observer state. When it comes to Palestine, the New Zealand state and its people have historically maintained an even-handed, diplomatic, and consistent approach to the Israeli conflict. We call on the New Zealand Government to maintain its strong principled stance in relation to Palestine and its commitment to Human Rights by condemning the recent Israeli violence. References: 1. https://www.middleeasteye.net/news/israel-palestine-aqsa-mosque-jerusalem-storm-raid-settlers 2. https://www.palestinechronicle.com/israel-limits-access-to-holy-sepulcher-church-for-holy-fire-ceremony-video/ This petition has been created by Palestinians in Aotearoa Coordinating Committee (PACC). This petition has been signed by Alternative Jewish Voices (AJV).965 of 1,000 SignaturesCreated by Palestinians in Aotearoa Coordination Committee
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Ensure access to ERP therapy for people living with OCDFixate is an online community for NZers living with OCD or supporting someone living with OCD, with over 800 members. Personal experiences shared within Fixate reveal heart-breaking stories of individuals and families struggling with untreated OCD. Aside from the enormous personal cost, there is a hidden public cost in the “revolving door of care'' where people receive ineffective support for unrecognised, misdiagnosed or untreated OCD. Early diagnosis and targeted interventions would reduce both suffering and the need for costly support and long-term therapy down the track. When emerging OCD symptoms that could be “nipped in the bud” are left untreated, they become embedded and more resistant to treatment. The best practice treatment for OCD is ERP therapy (2). Sometimes this can be accompanied by medication that ‘quietens the obsessive thoughts’, making it easier to do the exposure work. Most people who access these treatments experience substantial improvement and/or recovery (where troublesome unwanted thoughts still occur, but are manageable and no longer disrupt everyday life). In Aotearoa New Zealand, people experiencing severe OCD are referred to secondary mental health services. However there is a high bar to acceptance of referrals and staff with expertise in ERP therapy are reportedly scarce to non-existent. Even when a referral is accepted, people are added to long waiting lists and don’t access treatment for many months. Those who don’t meet the threshold for referral are left in primary care where health professionals lack training in ERP therapy. 1. https://www.stuff.co.nz/life-style/wellbeing/125409931/obsessive-compulsive-disorder-convinced-woman-she-was-a-dangerous-murderer 2.https://journals.lww.com/intclinpsychopharm/Fulltext/2020/07000/Clinical_advances_in_obsessive_compulsive.1.aspx To learn more about people living with OCD and ERP therapy, go to www.ocd.org.nz https://iocdf.org/blog/2017/03/31/view-the-new-documentary-living-with-me-and-my-ocd/ https://www.lawsociety.org.nz/news/lawtalk/lawtalk-issue-944/obsessive-and-compulsive1,436 of 2,000 SignaturesCreated by Marion Maw
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Commission of Inquiry into dyslexia & neurodiversity in New ZealandDyslexia/neurodiversity affects around 15% of people worldwide, and impacts on their education, their working lives, and wider social interactions. Dyslexia/neurodiversity are best described as differences, as opposed to disabilities, but the way that society treats them turns them into disabilities. Dyslexia/neurodiversity are poorly understood and often overlooked in government policies. Currently New Zealand gathers no statistics about dyslexia/neurodiversity and New Zealand Human Rights legislation is silent on them. Many people with dyslexia/neurodiversity are not aware they have it and many people with it strive to hide it to avoid ridicule. Sadly, most teachers in most schools are poorly equipped to support children with dyslexia. Pre-service teacher training provides minimal dyslexia/neurodiversity instruction for new teachers entering the education workforce. Without change the challenges facing dyslexic children and adults are not likely to be addressed. Meeting the needs of Kiwis with dyslexia/neurodiversity is an equity issue. Sadly dyslexic/neurodiverse Kiwis have been ignored. It is demonstrably unfair that this group of Kiwis continue to be short-changed and treated poorly. This is also a major workplace productivity issue. No country can achieve to its full potential when 10 – 15% of its population are not fully engaged. This petition is about giving all Kiwis a fair go.7,951 of 8,000 SignaturesCreated by Mike Styles
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Free N95 Masks For All!Given the extra risk of exposure and infection because of the recently announced changes, it is becoming increasingly urgent that N95, P2, or equivalent quality masks are available and universally accessible. The Government has said that all healthcare and border workers have access to N95 or equivalent masks. But as the Government opens up the border and eases restrictions internally, the general public of Aotearoa New Zealand need quality masks. These masks are comfortable and breathable, they prevent transmission and save lives. Prevention of infection is the best course of action. Along with concern for the capacity of our health system, we are extremely concerned about the wellbeing of people who cannot social distance or properly ventilate their spaces at work, where they live, or where they study. Good quality masks are vital for our wellbeing. Masks For All! References: 1. https://www.stats.govt.nz/news/annual-inflation-hits-a-three-decade-high-at-5-9-percent 2. https://www.stuff.co.nz/life-style/homed/renting/127544121/rents-still-rising-as-supply-pressures-remain500 of 600 SignaturesCreated by Communities For Public Health
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Save Our National Passenger Rail NetworkTrains connect communities and are an important part of climate change action. In late 2021, KiwiRail, announced end of same-day intercity services between Auckland/Wellington and Picton/Christchurch. They were to be replaced by luxury multi-day rail cruises. In a win for this campaign, KiwiRail recently reversed that decision and reinstated the Northern Explorer and Coastal Pacific effective September 2022. While this is a win for the travelling public, it is not the end of the issue. Much of Aotearoa New Zealand remains disconnected by from the rail passenger network and other services, like the the Capital Connection between Wellington and Palmerston North, remain under threat from underinvestment. This comes at a time when the Government has said it is committed to climate action and reducing inequality. Trains have connected friends and families for graduations, weddings, holidays, and business for generations. They have connected towns with the cities, and bought our country together. But a period of privatisation and decades of underfunding has limited the development and use of our national rail network. Trains have an important place in our future but it requires investment and planning from this Government. 🛤 Rail provides a more sustainable and climate friendly method of transport across the country. 🛤 Rail can invigorate the social and economic life of small communities by making them accessible to remote workers and tourists. 🛤 Trains can bring our diverse country together by connecting them to people and landscapes across wide distances. 🛤 Trains provide an accessible method of point-to-point transport for the elderly and disabled. 🛤 Trains can help take traffic off the roads and improve road safety. Rail is an important part of our past, but it should also be part of our future. Join the campaign to support the retention of a national passenger rail network.12,375 of 15,000 SignaturesCreated by Patrick Rooney
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Call to action on housing in KāpitiThe 240 houses that Kāinga Ora has across the District are not enough to house long-term homeless people, let alone the growing number of people who are coming onto the list. This includes people who formerly rented in the private sector and who have been given notice to leave their homes as landlords have decide to sell their properties. Even if there was an adequate supply of private sector accommodation, the exorbitant rents mean that people simply can't afford to meet that cost. There is strong support for this call for action across the entire Kāpiti population. Young people who can't afford to leave home; families with children who move in with their parents because they can't afford the rent demanded; an 85-year-old who has lived in the same unit for 17 years being given notice because the landlord is going to rent to a family member; working single people who can't afford a one bedroom flat - the scenarios come thick and fast and we hear them all.419 of 500 SignaturesCreated by Donna Bridgeman
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RNZFB: Honour Te Tiriti o Waitangi in your decision makingKāpō Māori Aotearoa members and whānau have lost confidence in the Royal New Zealand Foundation of the Blind (RNZFB) Incorporated governance practices and decision-making processes. - Kāpō Māori, kāpō youth and parents’ do not have a seat at the governance table. - Tāngata kāpō and parent consumer leadership funding continues to shrink. - "We know what’s best” governance approach that incites controversy and distrust of RNZFB governors and employees. - Reactive governance actions that polarise the kāpō sector. - Apathy and disregard to affirm through governance action the articles of Te Tiriti o Waitangi. Our rangatiratanga is being marginalised and will continue to be if we do not take urgent action to fix what is obviously broken! This petition is the first step towards affirmative change. Show your support by signing our petition.140 of 200 SignaturesCreated by Chrissie Cowan
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Emergency MIQ entry for pregnant couples to birth safely in New ZealandPregnant women and their unborn children are being put at risk because MIQ emergency allocation request guidelines do not address pregnancy needs. Very few get access to return to NZ. It has been reported that of 229 applications for pregnancy only 23 were approved.(1) We believe it is essential that pregnant people and their partners can return to NZ for antenatal, birth, and postpartum care, and that their health requirements be recognised as critical. Approaching birthing solo without the support of whānau, especially the other parent, is extremely stressful for pregnant people. Having to wait until you are heavily pregnant to return to New Zealand creates an added risk to both mother and baby. There are a number of cases where we’ve managed to get access to MIQ for pregnant people or their partners but it should not be left to individual advocacy. The New Zealand government must recognise and support the rights of pregnant people and ensure they can safely return home to birth their children. You can read more about this issue in the links below: https://www.stuff.co.nz/national/health/coronavirus/126612589/pregnancy-should-be-a-miq-priority-because-stress-endangers-the-baby-sir-peter-gluckman-says https://www.rnz.co.nz/national/programmes/first-up/audio/2018816139/father-of-prem-baby-applies-for-emergency-miq https://www.stuff.co.nz/national/health/coronavirus/127001444/miqsplit-couple-reunited-but-too-late-for-babys-sudden-and-traumatic-birth Reference: 1. https://i.stuff.co.nz/national/health/coronavirus/126598255/how-will-i-manage-pregnant-womans-fears-after-husbands-miq-denial133 of 200 SignaturesCreated by Roshni Sami
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End library book fines in ŌtautahiThere is "...no evidence that library overdue charges are an incentive for returning items on time. The experience of libraries in New Zealand and overseas is that overdue charges are a more effective deterrent and barrier to library usage, disproportionately impacting members of the community on lower and fixed incomes." (1). This change is important as it will bring Ōtautahi up to par with its peers across Aotearoa including Auckland, Carterton, Clutha, Dunedin, Masterton, Nelson, Selwyn, South Taranaki, South Wairarapa, Stratford, Upper Hutt, Waikato and Waimakariri that have, and or are removing these fines because evidence does not support that they work, and that they create barriers to access and learning. We have also seen post lockdown when the Council encouraged people to return books with a fee waiver we did, lets now make that permanent (2). (1). Report to Dunedin City Council from 27 October 2021 when they decided in favour- https://infocouncil.dunedin.govt.nz/Open/2021/10/CNL_20211027_AGN_1542_AT.PDF (2). https://newsline.ccc.govt.nz/news/story/libraries-issue-call-to-return-overdue-books294 of 300 SignaturesCreated by Josiah Tualamali'i
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Support survivors abused in careWe all need to support survivors, provide them the justice they deserve and support setting up an entity with the appropriate authority to address New Zealand’s continuing abuse in care crisis. In 2018 after huge public pressure, the Labour-led Government launched a Royal Commission of Inquiry into Abuse in care. Over three years the Inquiry heard evidence of abuse of children and vulnerable adults in care. As many as a quarter-million tamariki are likely to have been abused over decades. The evidence showed institutions chose the protection of their reputation and financial assets over help for the victims of abuse in their care, and have created barriers to discourage survivors reporting abuse. The Government is currently considering the Inquiry's recommendations for providing redress to survivors. However, survivors are not confident they will include the state entity they are asking for or be inclusive of all survivors abused in the care of an institution. It would be a mistake for the Government to set up a body that is not inclusive and separates State abuse from that of other institutions, such as churches or sports clubs. The Government is ultimately responsible for ensuring children and vulnerable adults in care are protected from harm, no matter which institution cared for them. It is also its responsibility to ensure all survivors of abuse in care be provided with sufficient and appropriate redress. Cabinet Ministers are right now considering bids for funding for the Budget 2022. We need to let them know they need to provide for survivors. The millions spent on the inquiry need to result in action. Many of the survivors are ageing, in their 60's, 70's and 80's, and dealing with the physical and mental consequences of their experiences in state care. The impacts from the abuse are significant and lifelong. They cannot wait more years for future offers of support. Justice for survivors will mean redress and the financial compensation, acknowledgement, apology, and the information they deserve and need. It will also include commitment to the scale of change required to ensure what happened to them does not happen to others. Survivors need an independent entity to report to so that they no longer have to engage in the re-traumatising process of reporting to the institution that they could not trust to keep them safe. They are also asking it have the authority to hold institutions that care for children accountable to ensure the abuse they suffered does not happen to others. An independent ‘Entity’ would have the statutory authority to audit and have oversight of the policies and procedures in place in institutions to protect children and vulnerable adults from harm, investigate and hold institutions accountable where they fail, and provide a public audit report to Government with recommendations for further change when required. The government leaving institutions to deal with the abuse of children in their care has failed. Current systems that exist are not fit for purpose and failing to provide what is needed. They are not accessible to all survivors, and are re-traumatising. We need an ‘Entity’ based on the principles of: • Inclusion • Te Tiriti O Waitangi • Accessibility • Impartiality • Transparency • Consistency • Timely access to Redress • Human Rights and Natural Justice The public remains unaware of the significant abuse crisis New Zealand is facing. Survivors are left unacknowledged, struggling, and silenced. Many have no access to redress systems and the barriers to access them are daunting. They need your support.100 of 200 SignaturesCreated by Network of survivors of abuse in faith based institutions