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To: Parliament

Inquiry into the consequences of conversion therapies for autistic children

Dear Minister,

We ask you and the government to investigate the consequences of all forms of conversion therapy, including conversion therapies that target autistic children, which are often branded as Applied Behaviour Analysis (ABA) or Positive Behaviour Support (PBS).

Why is this important?

We all celebrated to hear of the legislation being enacted that bans conversion therapy after years of campaigning by the LGTBQI+ community.

However the win does not go far enough. The same underlying techniques of torture and dehumanising coercion continue to be applied to autistic children.

Any legislation which is so selective as to ban only “conversion therapies” that target a person’s sexual orientation, gender identity, or gender expression is in itself discriminatory. If a government moves to ban the mistreatment of one minority in a particular manner but neglects similar mistreatment of other minorities it is more than negligent, it is actively legitimising prejudice. If a ban were to go through with specific reference to sexual orientation, gender identity, and gender expression alone, it would be much like an anti-racism bill that protected black people but left all other people of colour out in the cold.

Instead of acknowledging anxiety and depression as the result of the highly stressful environments and dehumanising treatments that autistic children are exposed to, many "autism professionals" prefer to treat autism as the 'problem', and then use medication as treatment.

The message to autistic people is very clear: 'you are not normal and we need to fix you'. This is wrong.

The University of Auckland and other institutions in New Zealand still teach ABA. In Aotearoa certified ABA practitioners continue to advertise their services for children with “compliance” problems.

Many autistic people who have been subjected to ABA and similar “treatments” end up with PTSD. Multiple studies confirm that the suicide rates for autists are are more than twice (1.9 to 9.9 times) the rates found in the general population.

It is so important that people, and especially parents of autistic children, start listening to the lived experience of autistic adults. Many of us are in our 50s, 60s and 70s. We all started out as autistic children, without formal diagnosis, and without intensive ABA "therapy".

We have found our path in life, we've experienced decades of discrimination comparable to the level of discrimination against LGBTQIA+ people 50 years ago, and we have remained autistic throughout. Neurodivergence is at the core of creativity. Autistic people don’t play social games, instead we actively resist them. Autistic people are best understood as the agents of a well functioning cultural immune system within human society.

What are conversion therapies?

Conversion therapies are “normalisation” therapies rooted in the techniques of torture and dehumanising coercion developed by Ivar Lovaas and Burrhus Frederic Skinner.

The same techniques that are used by ABA therapists have been named as abusive in domestic abuse prevention legislation. Dehumanising abuse of all children, including autistic children, must be made illegal.

The actual results that are achieved with conversion therapy include depression, PTSD, suicidal ideation, social expectations that are toxic for autistic people, as well as environments that create sensory overload.

Why do we propose to consider a ban of all forms of conversion therapy?

Conversion therapy never achieves its stated goal of “normalising” LGBTQIA+ or autistic children. Instead there is overwhelming evidence that conversion therapy results in extreme levels of irreversible trauma.

The autistic population is much smaller than the LGBTQIA+ community, but the intersection between the two is significant. Compared to the general population, autists are 7 to 8 times more likely to identify as LGBTQIA+. It makes perfect sense to tie legislation around the protection of LGBTQIA+ rights to the protection of the rights of autistic people.

What practices would need to be considered as part of a ban?

Of the many labels used “Applied Behaviour Analysis” (ABA) and "Positive Behaviour Support" (PBS) are the most common ones. It is important to focus on all “therapies” that are rooted in the techniques of torture and dehumanising coercion developed by Ivar Lovaas and Burrhus Frederic Skinner.

This initiative is part of the global Ban Conversion Therapies project (https://autcollab.org/projects/ban-of-conversion-therapies/), which keeps track of all the bans of conversion therapies that are already in place and all initiatives towards bans.

More background information has been compiled by the Autistic Collaboration Trust in collaboration with the autistic community in New Zealand on the following web page: https://autcollab.org/2021/03/10/banning-autistic-conversion-therapy-in-nz/.

Updates

2022-10-31 18:38:29 +1300

Kia ora koutou,

Many thanks for supporting this ongoing campaign. We have been very active in the meantime:

to launch a rapidly growing global database of Autistic lived experience, with a holistic focus on Autistic well-being, including intersectional cultural and psychological safety https://autcollab.org/projects/for-healthcare-professionals/ – and we invite you to participate in a related 5 minute anonymous survey https://www.surveymonkey.com/r/IntersectionalSafety;

to develop unique education courses on the neurodiversity paradigm, the neurodiversity movement, Autistic culture, and Autistic trauma https://autcollab.org/projects/courses/;

and locally in Aotearoa, to provide urgently needed public education in our public libraries https://autismaotearoa.org/autistic-communities-in-public-libraries/.

Onwards!

Ngā mihi,

Jorn

2022-02-01 06:23:09 +1300

500 signatures reached

2021-12-15 22:43:18 +1300

Onwards: International panels on banning all forms of conversion therapies this week, on 17 and 18 December (NZDT) https://autcollab.org/2021/12/14/onwards-international-panels-on-banning-all-forms-of-conversion-therapies/. We are building on the results achieved to date, focusing on the human rights violations in countries that have ratified the Convention on the Rights of Persons with Disabilities (CRPD). The Convention on the Rights of Persons with Disabilities and its Optional Protocol (A/RES/61/106) was adopted on 13 December 2006 at the United Nations Headquarters in New York, and was opened for signature on 30 March 2007. There were 82 signatories to the Convention, 44 signatories to the Optional Protocol, and 1 ratification of the Convention. This is the highest number of signatories in history to a UN Convention on its opening day.

2021-09-08 14:53:00 +1200

Zazi Hewlett from http://95bfm.com spoke to Spokesperson for http://AutCollab.org, Jorn Bettin, about why the autistic community is seeking the Conversion Practices Prohibition Legislation Bill to include a ban on all conversion therapies: https://95bfm.com/bcast/ban-all-conversion-therapies-w-jorn-bettin-september-8-2021.

2021-09-08 01:01:27 +1200

Kia ora koutou,

Our submission in relation to the NZ Conversion Practices Prohibition Legislation Bill has been received. The submission is the result of amazing local and international autistic collaboration.

We have prepared a media statement with a link to the full text of our submission on our website at

https://autismaotearoa.org/include-all-conversion-therapies-in-legislative-ban/

and we have sent letters with the attached submission to a number of MPs.

This is the start of the next phase of our campaign. Now that the submission is underway, the Autistic Collaboration Trust will engage in further education of the public and coordinate further international panel discussions to catalyse similar initiatives in other jurisdictions.

An educational video that we have distilled from the panel discussions on autistic conversion therapies: https://youtu.be/PTKZbXDYzv8.

Ngā mihi,

Jorn

2021-07-12 16:08:36 +1200

Parents of newly diagnosed Autistic children are presented with an overwhelming array of therapies, many of which are very, very expensive. How do you know what’s best for you & your child? In this heartwarming talk, educator Robin Roscigno offers a kind, respectful approach to Autism that starts with a reality check: what if your fear of Autism is being exploited for profit by a multi-billion dollar industry?

https://youtu.be/5ioac0Vxb3w

Robin Roscigno is a PhD Candidate in Education at the Rutgers School of Education who specializes in the history of Autism intervention in the U.S. Her experience as a late-diagnosed Autistic woman, parent of an Autistic child, and educator with 10+ years of experience inspired AuTeach, her community outreach project about respectful, neurodiversity-informed parenting & teaching. AuTeach has reached 1M+ viewers on TikTok and has helped shape a new narrative around Autism.

2021-07-12 14:42:12 +1200

Kia ora koutou,

Te Hapori Whai Takiwātanga o Aotearoa (https://autismaotearoa.org), an initiative of the Autistic Collaboration Trust, is a new website that is designed as an access point to the New Zealand Autistic Community: https://autismaotearoa.org/te-hapori-whaitakiwatanga-o-aotearoa/. The content is curated by autistic parents who are campaigning for a ban of all forms of “conversion therapies”.

Please share with your networks.

Ngā mihi,

Jorn

2021-06-12 13:33:09 +1200

The recording from the fourth panel discussion to progress towards a ban of all forms of conversion therapies including ABA is now available https://youtu.be/ApwmLUX5XXs

(see also related information at https://autcollab.org/projects/ban-of-conversion-therapies/4th-panel-discussion-towards-a-ban-of-all-forms-of-autistic-conversion-therapies/)

Topics and questions explored:

1. Challenges faced by autistic people in Thailand.

2. The motivation for founding NeurodiverThai.

3. Creating alliances to stop the use of ABA in Thailand both now and in the future.

4. How do we campaign against ABA in countries that so far have not had no one who felt safe to openly expose the dark side of ABA?

5. As a musician and an artist, I would like to know how to become more involved.

2021-06-12 13:29:49 +1200

The recording from the third panel discussion to progress towards a ban of all forms of conversion therapies including ABA is now available https://youtu.be/5FU7Tp_IeUg (see also related information at https://autcollab.org/projects/ban-of-conversion-therapies/3rd-panel-discussion-towards-a-ban-of-all-forms-of-autistic-conversion-therapies/)

Topics and questions explored:

1. Globally, where are we at in terms of banning conversion therapies? What are the best examples to point to?

2. How do we shut down derailing arguments about “new” ABA that primarily serve ABA specialists who don’t want to stop, not the people who are on the receiving end of conversion therapy?

3. What strategies do we have for dealing with existing ABA providers? Can we help to “convert” some of them to anti-ableist thinking, lest they simply go underground, or move to other abusive therapies? This would be part of the transition management.

2021-05-29 14:22:36 +1200

Alfie Kohn, author of Punished by Rewards and Unconditional Parenting, argues that manipulating people's behavior -- training them as though they were pets -- is both morally objectionable and, according to decades of research, unlikely to be effective in the long run.
Kohn offers a critique of interventions such as ABA, as being particularly destructive for autistic children. That's true for multiple reasons: the preoccupation with measurable behaviors that ignores the experience of the human being who engages in those behaviors; the proven drawbacks of carrot-and-stick control across a wide range of settings; and the poisonous message of conditional acceptance: "You are valuable only when you act the way you are told."

https://youtu.be/Iw0Qxz2dKNo

2021-05-28 11:42:12 +1200

The recording from the second panel discussion to progress towards a ban of all forms of conversion therapies including ABA is now available https://youtu.be/wLjplxe8cMQ.

(related info at https://autcollab.org/projects/ban-of-conversion-therapies/2nd-panel-discussion-towards-a-ban-of-all-forms-of-autistic-conversion-therapies/)

Topics and questions explored

1. The first panel discussion highlighted the need for adapting education systems to the reality of neurodiversity and to the intrinsic motivations that drive autistic ways of learning, so that parents are less compelled to find ways to “normalise” their children. What would learning environments that are optimised for the needs of autistic and otherwise neurodivergent children look like? How would neuronormative children learn and develop in such inclusive environments?

2. In our campaigns to ban conversion therapies in New Zealand and globally, which organisations and interest groups are suitable allies?

2021-05-20 15:00:09 +1200

The recording from the first panel discussion to progress towards a ban of all forms of conversion therapies including ABA is now available https://youtu.be/O-1eQhaKr-4.

(see also related information at https://autcollab.org/projects/ban-of-conversion-therapies/1st-panel-discussion-towards-a-ban-of-all-forms-of-autistic-conversion-therapies/)

2021-05-12 13:27:08 +1200

You are invited to join an online panel discussion on 20 May 2021 at 10 am to 11 am NZST to progress towards a ban of all forms of autistic conversion therapies (including ABA) – in New Zealand and beyond.

https://autcollab.org/projects/ban-of-conversion-therapies/1st-panel-discussion-towards-a-ban-of-all-forms-of-autistic-conversion-therapies/

Confirmed panellists:

1. Alice Richardson, artist and activist, New Zealand
2. Kim Crawley, cybersecurity researcher, Hack The Box, Canada
3. Laura Dilley, Associate Professor, Speech and Hearing Biosciences, Michigan State University, United States
4. Pip Carroll, writer and creative producer, Australia
5. Rory, independent researcher and advocate, New Zealand

Facilitator:

Jorn Bettin, activist, Autistic Collaboration Trust, and knowledge archaeologist, S23M, New Zealand

2021-04-30 09:06:03 +1200

Related article "A matter of basic human rights" from Kane Bassett, Ngāti Apa, Ngāti Kahungunu ki te Wairoa, (he/him) : https://www.salient.org.nz/news-2020/a-matter-of-basic-human-rights-petition-for-an-inquiry-into-the-consequences-of-conversion-therapies-for-autistic-children-drafted.

2021-04-24 01:02:37 +1200

100 signatures reached