• Petition for the Support to Decriminalize Homosexuality in the Cook Islands
    Ko Sonya Apa Temata toku ingoa, I am known as 'Apa' here in our Ipukarea after my papa Tapeka Apa. I am Cook Islands Māori Tahiti born in Aotearoa NZ. Ko Vakas Takitumu, Te Au o Tonga & Puaikura. I am Atiu (Tangapatoro/Tekapo/Ngaata anau), Mauke (Noema/Temata anau) Mangaia (Cummings anau) Rarotonga (Tamaiva/Tepuretu anau), Arorangi (Apera/Temata anau) Tahiti the Parau fanau (Rurutu/Raiatea) ko Tupuna Paora Parau iwi Ngati Kahungungu, Aotearoa. I am Aka TutuTane/Takataapui we don’t fit into any specific constructed mould’s of gender & sexuality, traditionally we are known as Takatāpui (NZ Maori), Mahu (Hawaii & Tahiti), Vakasalewalewa (Fiji), Palopa (Papua New Guinea), Fa’afafine/Fa'atama (Samoa), Aka’vaine/ Aka'Tutu Tane (Cook Islands), Fakaleiti (Tonga), Fakafi’fine (Niue) & other Indigenous Rainbow peoples Sister Girls & Sister Boys (Australian Aboriginal) Two Spirit (First Nations Peoples). My mother Tuakana Apa Temata was my number one advocate and supporter of LGTBI rights, her acceptance of my sexual orientation and that of my two brothers allowed us to be who we are, and to love whom we wanted to be with regardless of sexuality, gender and sexual orientation. My mother and great grandma Mama Mii Cummings Ngaata instilled in me strong values of respect, humility and acceptance, they also taught me the ‘art of compassion’, to give unto others as they would give unto us. There teachings speaks volumes, and that is reflected in the work I do as a nurse, an activist, a feminist, a humanitarian, an advocate & a leader. It is with great sadness that our mother passed away last year and so her legacy continues in me and the work she was so passionate about and for. As a survivor of domestic & sexual violence, she passed onto me the same passion and determination to provide advocacy, support & assistance to women fleeing from violence & trauma and those less fortunate especially from our LGTBI community. My own personal involvement within our Rainbow Pasifika/LGTBI community extends from my own in a professional and volunteer capacity. As one of the Auckland Pride Board members from 2016 to 2018, I am one of our diverse community leaders who lead & coordinated our Pasefika Pride float, a non-profit collective of diverse community leaders & volunteers based in Tamaki Makaurau, Auckland. For the first time ever in 2014 our Pasefika Rainbow community had ‘visibility’ & showcased our diverse arts, heritage & culture along Ponsonby Rd, Auckland. Then in 2015, Pasefika Pride established to bring forth a generation of young and older Rainbow Pasefika LGTBI represent again in 2016 with our theme: ‘It Takes a Village to Raise a Child’. Pasefika Prides message was to address & highlight the counteracting issues of suicide, violence & abuse, poverty, stigma & discrimination that is prevalent amongst our diverse Pacific & Maori communities. In 2017 we merged with Tangata Whenua, Ue Nuku Whanau & created the biggest ever float with Maori & Pasefika combined renaming ourselves as Oceania Pride Aotearoa: Ngā Aho Tapu o Te Moana-nui-ō-Kiwa, Sacred Connections of Oceania. In 2018 Oceania Pride Aotearoa amplified its voice to reduce stigma & discrimination across Oceania and to support the amendment, removal & action on the Decriminalization to the Homosexual Legislation that currently exists in the Cook Islands & other Pacific nations. This year 2019 we marched with our Rainbow LGTBI community & Auckland Pride once more in support of our Takataapui & Rainbow Pasefika community to amplify our voices and to decolonize the very same hegemonic systems & structures that continue to perpetuate hate, violence and discrimination against those most vulnerable. It is important to acknowledge the historical influences & devastating impact of Colonisation and early settlements by missionaries and its impact on indigenous knowledge & understandings of gender, sex and sexuality, and how this has shaped broad social attitudes and norms in Aotearoa NZ (Reid et al, 2017) and across Te Moana Nui o Kiva. The Cook Islands is one of several Pacific nations, which, still criminalize same-sex relations between men and offer no human rights protections to those who are widely ostracized & often discriminated by their families & communities. For many across Oceania, these nations cling to anti-gay laws enacted under colonial rule and the influence of conservative Christian missionaries. Those laws criminalized consensual sexual relations between males but not between women until just recently here in the Cook Islands. The launch of the United Nations Pacific free and equal campaign in 2014 was to end Transphobia and Homophobia this also reignited calls in the Cook Islands & other Pacific nations to change the law. Aotearoa NZ has a long-standing track record & history of being the first country to Give Women the Vote. The first country to have the largest number of openly gay or lesbian politicians to have served in New Zealand's Parliament, Tim Barnett, Chris Carter, Louisa Wall, Maryan Street, Georgina Beyer became the first transgender mayor in the world and the world's first transgender MP. Our LGTBI Rainbow communities continue to experience discrimination, stigma, homophobia, violence and suicide. We have the highest suicide rates amongst Māori & Pacific whereby our Rainbow LGTBI community statistics are the highest amongst this population. In New Zealand, it is unlawful to discriminate against anyone because of their sexual orientation or sex/gender identity within areas of life as stated by the Human Rights Act 1993. As the saying goes, it takes a village to raise a child, a collective approach to remind us all the reality of the issues that we continue to fight for and against. Resilience comes in many forms built on courage, mana & integrity.. my sexuality does not define who I am..who I am and where I come from defines 'me'..Kia Orana e Kia Manuia #SpeakUpAndAgainstStigmaDiscriminationAndHomophobia
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    Created by Sonya Temata
  • Reduce the nicotine in cigarettes
    Smoking is one of the largest public health issues in Aotearoa. Every year nearly 5,000 Kiwis die from smoking-related illnesses (1). Smoking is the leading cause of preventable death and disease in Aotearoa. It increases a person’s risk of developing numerous cancers, as well as strokes and heart disease (2). On average, a long-term smoker will die 10 to 15 years earlier than non-smokers. But it’s not just direct smoking that is negatively impacting Kiwis. The impact of second-hand smoke continues to contribute to high rates of asthma and respiratory illness in our tamariki (3, 4). Smoking takes a toll on our health system, our whānau and our communities. Tragically, as with many health issues in Aotearoa, smoking disproportionately harms Māori and Pasifika. 31% of Māori adults and 20% of Pasifika adults smoke daily (5). If this government is truly committed to addressing health inequalities in Aotearoa, then reducing the addictiveness of cigarettes is an important place to start. Quitting smoking cigarettes can be hard for many people, even though the overwhelming majority of smokers want to quit (6). The main reason people feel incapable of quitting is that cigarettes contain nicotine, a highly addictive drug. Currently the amount of nicotine in cigarettes is not regulated. The tobacco industry has been able to distribute products with a high nicotine content, leading young people to become quickly addicted when they start and making it incredibly difficult to stop. Requiring companies to remove or significantly decrease the nicotine content from their products would help to end this cycle. A reduction in nicotine would make smoking much less satisfying, resulting in smokers slowing or stopping consumption (7) and minimising the likelihood of young people becoming quickly addicted. Current smokers would be more able to kick the habit, save money and improve their health. Reducing the nicotine in combustible tobacco products compliments the increased availability of e-cigarettes which contain nicotine, giving smokers the opportunity to switch to a less harmful product. Join us and call on our government to reduce the nicotine in cigarettes. This petition is part of Reduce the Nicotine, a broader campaign to reduce the nicotine in cigarettes in Aotearoa - get involved and find out more at: http://reducethenicotine.co.nz/. References: 1) Ministry of Health. (2004). Looking upstream: Causes of death cross-classified by risk and condition, New Zealand 1997. Wellington: Ministry of Health. 2) Laugesen, M. (2000). Tobacco statistics 2000. Wellington: Cancer Society of New Zealand; Vineis, P., Alavanja, M., Buffler, P., Fontham, E., Franceschi, S., Gao, Y.T., et al. (2004). Tobacco and cancer: Recent epidemiological evidence. Journal of National Cancer Institute, 96: 99-106; Ministry of Health. (2005). Tobacco facts 2005. Wellington: Ministry of Health; Quit Victoria. (n.d.). 3) Vineis, P., Alavanja, M., Buffler, P., Fontham, E., Franceschi, S., Gao, Y.T., et al. (2004). Tobacco and cancer: Recent epidemiological evidence. Journal of National Cancer Institute, 96: 99-106.; Jha, P., Ramasundarahettige, C., Landsman, V., Rostron, B., Thun, M., Anderson, R. N., et al. (2013). 21st century hazards of smoking and benefits of cessation in the United States. New England Journal of Medicine, 368, 341-350. 4) Fergusson, D (2015). Christchurch Health and Development Study: Overview of 40 Years of Findings (2015). ASH Scotland (2012). Reducing Children’s Exposure to Second Hand Smoke in the Home. 5) Ministry of Health. New Zealand Health Survey (2006/07 – 2017/18) data tables. 6) Ministry of Health. 2009. New Zealand Tobacco Use Survey 2008: Quitting results. Wellington: Ministry of Health. 7) Donny EC, Walker N, Hatsukami D, Bullen C. Reducing the nicotine content of combusted tobacco products sold in New Zealand. Tobacco Control. 2017(26):e37-e42.
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  • Regeneration not Incineration - for a Zero Waste Aotearoa
    Find resources, facts and up to date information about waste-to-energy incineration here: https://zerowaste.co.nz/waste-to-energy-incineration/ WE’RE GOING CIRCULAR Right now, we are seriously challenging our planet’s ability to sustain life. People everywhere are looking for ways to preserve valuable resources and prevent pollution while creating jobs and invigorating a zero waste circular economy. Incinerators undermine these goals because they’re part of an outdated linear system that forces us to continually extract new resources only to destroy them after we’ve used them for just a short while. Our future lies in replacing these destructive technologies with regenerative systems. INCINERATORS POLLUTE OUR AIR While it’s true that today’s incinerators are cleaner than older models, they’re still not perfect. Modern incinerators still release toxic chemicals that include dioxins [4], mercury [5] and cadmium [6] – substances that cause cancer, nerve damage and birth defects. Anyone who lives downwind from an incinerator is in danger of breathing in these dangerous chemicals and suffering the health consequences. [7] Toxins released into the air fall back onto the land to be absorbed by plants and eaten by livestock eventually finding their way into our bodies, via our food, causing further sickness and disease. [8] But the worst part about these toxins is that many don’t break down with some persisting in their toxic state in the environment for decades. [9] INCINERATORS POLLUTE OUR LAND Up to 25% of waste that’s burnt falls to the bottom of an incinerator to become incinerator bottom ash (IBA). This extremely toxic material is mostly dumped in special hazardous waste landfills, but in some countries it’s also used in roading and construction and sometimes spread on land as fertiliser. [10] Researchers are now raising serious concerns about the dangers of IBA with numerous studies [11] showing the detrimental effects of this highly toxic material. These problems are compounded by disposal of smokestack filters that capture highly toxic fly ash. INCINERATORS POLLUTE OUR FRESHWATER AND MARINE ENVIRONMENTS Incinerator toxins falling back to land are regularly washed into waterways where they combine with leachate from hazardous waste landfills. These contaminants poison fish and other aquatic life as they flow through our streams and rivers into our harbours and eventually into our oceans. These toxins have the potential to enter our food chain at every stage of their journey to the sea. INCINERATORS RELEASE GREENHOUSE GASES While toxins emitted from incinerator smokestacks cause immediate health concerns, most of the exhaust gas is carbon dioxide, which has long term effects on our climate. The Intergovernmental Panel on Climate Change reports that each tonne of waste burnt produces up to 1.2 tonnes of carbon dioxide [12] which can stay in our atmosphere contributing to global warming for decades. Throughout the world, we’re looking for ways to urgently reduce our climate change emissions. Waste-to-energy incinerators work in direct competition with this goal. Incinerators contravene our climate change commitments as signatories to the United Nations Framework Convention on Climate Change, the Kyoto Protocol, the Paris Climate Agreement, and Agenda 2030. And, they directly contradict support for our Pacific partners through endorsement and support for the Kainaki II Declaration (which declares a climate crisis in the Pacific region) and, our signed commitment to the Boe Declaration on Pacific security. INCINERATORS ARE INEFFICIENT While incineration companies are happy to point out that the waste they burn would otherwise be sent to landfill, they don’t mention that household waste is a substandard fuel. The World Energy Council found that, kilogram for kilogram, waste produces less than one-third the energy of coal and up to one-sixth the energy of natural gas while producing many times the amount of pollution. [13] Here in Aotearoa New Zealand, we currently produce 80% of our electricity from renewable sources. And, we have a plan to increase that to 100% by 2035. [14] Waste-to-energy incinerators compete with our renewable energy goals and undermine our commitment to a low emissions economy. INCINERATORS DESTROY VALUABLE RESOURCES Our society is fast becoming aware than our finite planet does not have an unending supply of natural resources. At the same time, we’re learning the importance of protecting and recirculating our resources. Governments, businesses and communities everywhere are looking for better ways to encourage people to refuse, reduce, redesign, reuse, repair, refurbish and recycle the things we use to make sure our resources are not destroyed. Incinerators work in direct conflict with these zero waste objectives. INCINERATORS DESTROY JOBS A key selling point used by incinerator companies is that they create jobs. Disputing this argument, the EU social enterprise reuse, repair, and recycling group, RREUSE, recently found that for every job that the incineration industry might create, recycling centres create 36 jobs and reuse activities create 296 jobs. [15] Materials recovery and recycling services are set to become a rapidly growing sector in the country as our society moves towards a post-waste circular economy. Incineration undermines this plan. INCINERATORS DESTROY ZERO WASTE EFFORTS While we accept that waste is a problem, we know that incinerators aren’t the answer. Here in Aotearoa New Zealand, we can address our waste issues in regenerative ways that preserve rather than destroy valuable resources, prevent pollution, produce sustainable and innovative products and material systems, create jobs, and invigorate a zero waste circular economy. To help achieve this goal, we hope you will join us in opposing waste-to-energy incinerators in Aotearoa New Zealand. Footnotes: https://tinyurl.com/y5chaw5k
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  • Cancel 'Feminism 2020' at Massey
    It has come to our attention that in November this year, Massey University is hosting the event ‘Feminism 2020’ on its Wellington campus. The event is run by Speak up for Women (SUFW) who advocate against trans rights and spread scaremongering misinformation about trans people. SUFW masquerade under the guise of feminism, while actively turning transgender lives into a subject of debate; a dehumanising and harmful rhetoric. Massey Students’ Association stands for free speech and we respect the right of external groups to host events on campus. However, one of the key tenets of free speech is recognising that marginalised groups often don’t enjoy the same rights to freedom of expression. So with that in mind, Massey Students’ Association is choosing to prioritise the voices of our trans whānau who have told us that this event hurts them. By providing a platform for a hate group to speak on our campus, Massey University is putting ‘freedom of speech’ over the safety of its staff and students. Allowing this event to go ahead on campus will harm the trans community both directly; with ‘Speak up for Women’s’ attempting to spread their dehumanising ideology within our community and indirectly; by showing our students that Massey University is providing a space for people to spread hate and harmful anti-trans rhetoric. This is incredibly harmful to an already vulnerable group, with 71% of trans people reporting high or very high psychological distress in 2019’s Counting Ourselves community report. Massey is not obligated to host and provide a platform for an intolerant ideology that advocates for policies that make trans people feel less safe in the world. Freedom of speech doesn’t mean that we have to host an event that will cause harm to students on campus. If the University is serious about wanting to protect the rights of their transgender students there is no excuse in hosting this event. The student community already feel less safe on campus because of Massey’s decision to allow the event to go ahead. Within a few days of announcing the event, our campus has been plastered with trans-exclusionary radical feminist (TERF) stickers. MAWSA has met with UniQ and consulted the trans-community on campus, and the message from the student community is clear; the presence of this event on our campus is already damaging the wellbeing and safety of trans, intersex and queer communities. To prevent further harm to our student community, MAWSA requests, on behalf of Massey Wellington Students, that Massey University cancels ‘Feminism 2020’ within the next 24 hours. There is no room for hate on this campus. The group 'Speak up for Women' advocate against trans rights and spread scaremongering misinformation about trans people. SUFW masquerade under the guise of feminism, while actively turning transgender lives into a subject of debate; a dehumanising and harmful rhetoric. By hosting the 'Feminism 2020' event Massey are providing a platform for hate and division to be spread here and make trans and queer people feel unsafe. This is incredibly harmful to an already vulnerable group, with 71% of trans people reporting high or very high psychological distress in 2019’s Counting Ourselves community report. MAWSA is not in support of this and we stand with our trans community. The effect of such an event has already been seen, with anti-trans stickers already being plastered around campus. Online hate has been spread, our trans students are being put in direct danger and we only see this getting worse if this event is not cancelled.
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  • Bring Priya and her girls to safety in New Zealand
    Most of us believe family comes first. But in just a matter of days, some people in the Australian government could deport two small girls to their death - unless the New Zealand government offers them safety. Picture this: Two small girls scream with fear as they are forced to watch their mum being physically dragging onto a plane - she fights the attempt to deport her back to Sri Lanka, a country she escaped after watching her fiancé be burnt alive. Priya knows that if she and her daughters are forced back, her daughters may suffer the same fate, or even worse as revenge for her escape, like any mum, she is fighting for her children’s safety. Tharunicaa and Kopika are 2 and 4, they were born in Australia and have lived their whole lives in the town of Biloela, a community that loves them and their parents Priya and Nades and is desperately fighting for them to stay. The whole town wants them back home, but instead the Australian government has sent them to Christmas Island, a detention centre routinely used for the deportation of people with criminal convictions and which our own politicians have described as disgraceful. While the Australian government is refusing to let them go home, we are begging the NZ government to step in and save these two girls from likely death. A temporary court injunction has stopped the deportation until Friday this week but without an intervention, their future remains uncertain and terrifying. New Zealand has previously taken refugees rejected by Australia. In 2001, Australia refused entry to 433 refugees on the Tampa. Those people were welcomed by New Zealand and have gone on to become small business owners, doctors, nurses, public servants, students, keen rugby players and even a Fulbright scholar. Priya’s husband, Nades, who she met in Australia has been working in the Biloela meatworks for over five years until they were taken into detention. He is hardworking and capable and, with meatworks employers across New Zealand screaming out for more workers he can start working straight away to support his family. They are the kind of family New Zealand needs and could have the same incredible impact on any new Zealand community that they have on the families of Biloela. They are now two days away from being deported back to danger. They are the only refugees on abandoned Christmas Island prison. Tharunicaa and Kopika cannot stop crying, asking when they can leave this scary place and go back to their home. It’s time for us to bring them here and allow them to make New Zealand their home. Read more: https://www.theguardian.com/australia-news/2019/sep/04/biloela-tamil-familys-deportation-blocked-until-at-least-friday
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  • Support the Lets Get Wellington Riding Vision
    We're seeing electric bikes and scooters sales grow at 100% year on year, and we've seen an increase in commute cycling of 25-40% across the city in the last year. They're often the fastest and cheapest ways around the city. We should be doing everything we can to support them. These new vehicles need safe space to operate on the road. The current plans for cycleways were developed before the explosion in these new types of vehicles. As such, it's no longer fit for purpose. We’ve designed the Let's Get Welly Riding Vision for Wellingtonians to take and run with (or ride, as the case may be). We hope you are inspired and join us in making Welly the best place in the world to live!
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  • Pledge your support for the Dementia Declaration
    Nearly 70,000 people have dementia now and we expect that number to increase to 170,000 by 2050 as New Zealand’s population continues to age. And that is just the tip of the iceberg. For every person diagnosed with dementia there are family, whānau and friends also affected by the diagnosis. It is distressing to watch people struggle so much, and to see the spiraling impacts of that struggle. But it is not too late to change the game, to put in place the systems, support and services that New Zealanders are going to need in coming years, and to reduce the cost burden on the country.
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  • Safe parking for the staff of Middlemore Hospital
    The cars of Middlemore Hospital staff are frequently broken into, causing distress and unexpected costs for the staff. This happens in the staff parking lots which are too easily accessible for people from outside the hospital. Windows are smashed, things are stolen, steering wheels are broken, ignitions damaged. The fact that this mostly happens at night is very stressful for the staff who finish a shift at midnight and then often cannot drive themselves home because their cars have been damaged. There is also not enough parking for all the staff at the hospital.
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  • Put children and whānau wellbeing at the heart of welfare
    In good times and in hard times, we should all have the dignity and security of a roof over our head, healthy kai on the table and the essential things we need. A stable whare (house) is the foundation for a good life. None of us can go about our lives, raise a family, go to work or stay healthy without a warm, dry and safe place to call home. But right now, due to the way in which successive governments have run down the welfare system, and taken a hands-off approach to the housing market, New Zealand’s homes are some of the least affordable in the industrial world. Families are having to choose between rent and food. When people lose their job, get sick or end a relationship and then can’t keep a roof over their heads, we are seeing the failures of an unkind, unjust and unbalanced economic system. When corporations are taking in record profits, but there hasn’t been a real increase in income support for a generation, and more and more people can’t make ends meet, our society is out of balance. These statistics should both astound and compel us into action: ➡️ The wealthiest 20 percent of people in New Zealand hoard 70 percent of the wealth, while the poorest 40 percent have just three percent. ➡️ Two New Zealand billionaires have more combined wealth than the poorest 30 percent of people in this country. ➡️ Over 50 percent of all people in New Zealand who receive an Accommodation Supplement to pay for their housing needs are spending more than half their incomes on housing, while four out of every five renters cannot afford to pay their rent comfortably. ➡️ The median Pākehā has $114,000 of wealth. The median Māori has $23,000. That’s a gap of $91,000. The median Pasifika person has even less at $12,000. ➡️ Between 2004 and 2010 the wealth of the richest one percent - about 34,000 people - increased from $94billion to $147billion; that’s $4,323,529 per person. Meanwhile the poorest 10 percent of people saw their net debt increase from $5.7billion to $7.4billion. CEO pay is increasing at almost five times the rate of the average worker. ➡️ 27 percent of New Zealand’s children live in poverty, where poverty is defined as having less than 60 percent of the national median household income (after housing costs), while six percent (70,000) of all children live in severe hardship. ➡️ There are now at least 41,000 homeless New Zealanders, more than half of whom are younger than 25. There is too much wealth in too few hands while everyday New Zealanders struggle to make ends meet and the cost of living continues to soar. We need government intervention to end the poverty trap and rebalance our economy. We need government intervention to ensure that everyone one in this country has enough pūtea (income) to live with dignity and participate fully in the community. If we are to fulfil the Coalition Government’s goal for Aotearoa to be the best place in the world to be a child, then all parents, whānau and caregivers must have a liveable income. A hands-on government can fix our broken economic system. A hands-on government can change the rules to make our economy fair, kind and just. A competent and caring government can ensure that every child and whānau flourishes. Read more: http://www.welfareforwellbeing.org Image credits: Serena Stevenson Photography
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  • Open letter to Waikato Regional Council to pay contractors a living wage
    A Living Wage is the income necessary to provide workers and their families with the basic necessities of life. The Living Wage enables workers to live with dignity and to participate as active citizens in society. Research has found a Living Wage enables employees to be able to spend more time with their families, feel valued, be less stressed and consequently happier and more motivated in their workplaces. Furthermore, treatment of employees is integral to business success. A report undertaken in the UK found implementation of a living wage decreases staff turnover and increases productivity. Reference: Brown, Newman & Blair, (2014) "The Difference a Living Wage makes" Paper to the Population Health Congress
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  • Help end period poverty - subsidise menstrual cups
    We are three young women (Kacey, Chloe, and Heleana) running a campaign called Menstrual Mana. The important social issue we are working on is making menstrual cups more affordable and accessible to the vulnerable - in particular, making menstrual cups free for girls who attend decile 3 or lower schools. Menstrual Cups are a new product which were developed to help diminish the high pollution rates caused through other menstrual products such as pads and tampons. “The average woman uses roughly 11,000 tampons in her lifetime. The time it takes for a tampon or pad to degrade in a landfill is centuries longer than the lifespan of the woman who used it, particularly when wrapped in a plastic wrapper or bag. In addition, the process of manufacturing these products – turning wood pulp into soft, cotton-like fibres – is both resource- and chemical-intensive” (Rosie Spinks 2015, The Guardian). However, even though menstrual cups reduce pollution, they’re also triple in price of a box of tampons/pads. The price of menstrual cups is an issue for many women in New Zealand, especially women who are still at school and don’t receive an ongoing income. Sign this petition to show support towards Menstrual Mana's hope in making Menstrual Cups free for women who are in decile 3 or lower schools. Period poverty 'a human rights issue' - https://www.tvnz.co.nz/one-news/new-zealand/period-poverty-human-rights-issue-says-green-mp-golriz-ghahraman-some-girls-miss-school?auto=5825163987001
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  • Call to Parliament for improved access to the residential care subsidy
    My name is Grace Taylor. I am the daughter of a mother suffering from Alzheimer's / Early Onset Dementia. Mum is 1 of the 60,000 people in New Zealand currently affected by this disease. A statistic set to triple in New Zealand by 2050.[1] In March 2018, my mother’s health deteriorated and as a result, medical professionals advised my brother (who lives in Australia) and I that our mum required full time care by skilled professionals. We made the heartbreaking decision to admit our mother into a residential care home. A bigger hit came in May 2018, when my mother fell victim to unfair legislation that is crippling our family to financially provide for the quality care that my mother so rightly deserves. Two months after mum's condition required her to be admitted into full time care, mum’s application to the Ministry of Social Development for the residential care home subsidy was denied, in full and stood down to reapply again for another 4 years. This is due to the strict, blanket criteria of the eligibility for this subsidy. More specifically the criteria around the income and asset testing of applicants. Anyone’s loved ones could require residential care for many health reasons. As of 30 June 2018 there were 31,566 people aged 65+ in long term aged residential care. In addition there were 550 in respite care, for a total of 32,116. There are a further 1271 “Other residents” in living in aged care facilities but who don’t qualify for aged residential care ie “people fully funded by ACC or people with long-term conditions who are not assessed for aged residential care”.[2] Papers released under the Official Information Act show that each year around 1000 people with assets or income over the threshold receive no government help to pay weekly residential care costs that can reach over $1000.[3] "The asset base that you have to fall below to qualify for the subsidy is, I would argue, really quite low. We get a lot of people saying to us, look I just didn't know that dementia would be this expensive. It really costs people a lot of money." - Paul Sullivan, Chief Executive Dementia NZ I went public with my mother’s story on social media in May 2018. Within 24 hours - 10 NZ families contacted me directly with very similar stories for their loved ones with that have required residential care home to care for their loved ones. And there are so many more. With the denial of her residential care home subsidy due to the asset and gifting threshold set by the Ministry of Social Development, my mother has been stood down for 4 years to receive any financial support for her care home fees. Leaving my brother and I to pay her $4900 monthly fees, for the next 4 years. I am a single mother, I work full time, have a mortagage, and the only benefit I receive from the government is the OSCAR subsidy for my son’s after school care. Since March 2018 I have been had to take out personal loans, and rely on contributions of my brother, mum’s minimal pension, and my salary to pay $890 a fortnight for our family home mortgage, and $4960 a month for mums care home fee. As of August 2018, I can no longer maintain these costs. As a result we have been forced into a decision to sell our family home, of 40 years, in order to fund mums care over the next 4 years. A home that was the only place that was familiar and safe to my mother as her dementia took hold, a home I have been raising my son, a home that was my mother’s only material asset, a home that my mother worked 3 jobs to own and provide as security for her children. This is now being taken from us. My mother has never received a benefit from the government and has worked 2 sometimes 3 jobs for over 40 years to provide for us. I have followed all the formal avenues and processes with my local MP, Ministry of Social Development and Ministry of Health. Having received responses from each minister directly it became very clear that what needs to be addressed is the legislation around the residential care home subsidy. This is my call, on behalf of many voices, for that action. Please raise your voice with me. Fa'afetai tele lava. To read more about the detailed bigger picture of my family's story please visit: https://www.radionz.co.nz/news/national/363396/families-of-dementia-sufferers-face-huge-bills Tagata Pasifika feature story: https://www.youtube.com/watch?v=27r-EA0JSJY&t=7s Here is my open letter to NZ in response to our situtation. https://www.facebook.com/grace.taylor.5437923/videos/1627972693991555/ References 1. As stated in the report Economic Impact of Dementia (2016) by Deloitte & Alzheimer's New Zealand 2. New Zealand Aged Care Association 3. Radio New Zealand, 6th August 2018
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